Caregiving can make demands on you that you never would have expected. But even when a
difficult caregiving situation is thrust upon you, you have choices in how you respond. Your
caregiving duties may indeed limit the range of options available to you, but you can still
live a full, rewarding life, even if it’s not one you would have expected.
Next Step
Caregiving brings about changes in your relationships. Learn how to respond.
Learn more
Start by making a conscious decision to be an effective, assertive caregiver. Taking
ownership of your role goes a long way toward preventing feelings of victimhood from
interfering with your caregiving.
A big part of assertive caregiving is addressing future concerns now, instead of waiting to
respond to a crisis. Write down your caregiving worries, alongside their causes and
realistic things you can do now (if any) to address them. If you haven’t done so already,
get your loved one’s and your own advance directives in place as soon as possible.
Some otherwise assertive caregivers become passive when dealing with medical professionals.
Remember that as a caregiver, you’re an important member of the healthcare team. Educate
yourself about your loved one’s condition, provide input, and ask questions.
Like you, doctors and nurses have a number of responsibilities competing for their time and
attention; the squeaky wheel often does get the grease. Being assertive doesn’t mean
challenging every little annoyance. Pick your battles and don’t sweat the small stuff.
Even when you don’t get what you ask for, you make your needs clear to yourself and others.
By defining them, you preserve your own sense of worth. (It’s very hard to feel hopeless and
assertive at the same time.) By being “pushy,” you also contribute to the well-being of
other caregivers and help doctors understand caregivers’ needs. Remember that millions of
caregivers are facing similar challenges.
Content shown was developed in collaboration between AGIS and National Family Caregivers Association.